Back in 1999-2000 I went from trim and slim to round and bumpy. In just over a year I put on 65 lbs. I was sleeping 10 hours at night and a 2 hour nap every day. I rarely ate and I barely functioned. It was awful. I was also having trouble with my hands in the mornings. My knuckles hurt and I always felt swollen. I finally went to a doctor and he checked my thyroid and tested for rheumatoid arthritis. I hadn't heard anything in 3 days so I called and my doctor was on vacation and the one filling in gave me the results. Normal. I remember crying, feeling hopeless, not knowing what was wrong with me. Hubby was certain that I was dying. A few months and 20 lbs later I got a call. It was a nurse from the doctor's office and they were going through records and noticed that I had not started any meds for my thyroid. I was shocked as I had been told that I was within normal range. Apparently only one test result was back and the other doctor was not aware of both tests and somehow it was missed. So now I knew and this time my tears were that of relief. It is scary to be so out of control of your body. So I started meds and while the weight never came off I finally quit gaining.
Fast forward a few years. I was feeling good and had gotten lazy and was no longer taking meds. And then bam! A repeat of the previous years. I put on 28 lbs in 2 months. That is a LOT!!! I knew the signs and symptoms so I returned to my doctor to get back on meds. However my TSH was 'normal' at 2.64. I really didn't care what the test said I knew that I didn't feel good but my doctor wouldn't treat me. The same doctor that told me I would be on meds for the rest of my life. So I switched docs and got the same response. Being the stubborn person that I am I decided to skip all of the primary care docs and found and endocrinologist. My first visit she was not convinced that anything was wrong but ran tests anyway. Everything was normal except one thing: antibodies. I was positive for thyroid antibodies. I know very little of all of this but she did say that it would cause the same symptoms as a high TSH and put me back on meds. Not long after we moved forward with EA and at that time I had told the RE about this and he put me on heparin during my cycle. And that was the cycle that I got pregnant with Maddie.
During my pregnancy and since I have just gone to my new primary doctor. She has been good and I like her so it was easier. And when I requested to be tested for antibodies she told me she would include it. And then in January I did another FET and it was negative. Before it I had mentioned that I had used heparin previously and he saw no need as it did not help those with hypothyroidism. I had forgotten about the antibodies and never even mentioned them. Now that I have been dieting and not losing like I thought I would (I am only down 2 lbs and not the 14 I had previously thought) I decided to return to my endo. I requested my labs from my doc and found that she had in fact not tested anything other than TSH. So I turned to dr. google and found that those with antibodies may have trouble getting pregnant, that the body could attack the embryo and prohibit implantation or cause a miscarriage. Now I am concerned that our next cycle is doomed if I can't get this figured out.
I am going to push for the heparin no matter what. Even if there is no need for it other than peace of mind. I will feel much better being on it. I am also going to my endo tomorrow and hope for answers. I really, really want to proceed next month but not if it means certain death to these embryos. They deserve the best chance I can give them.
If anyone has any suggestions, advice or insight please share!!!